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Fighting Fybromyalgia (Mar. 2000)
by: Anneliese London
Q. My sister has fibromyalgia. She feels miserable, has muscle pain and is always tired. I
would like to be supportive and help her by finding effective treatments. What do the experts in
this field recommend to relieve symptoms?
A. Fibromyalgia syndrome is a chronic disorder characterized by widespread
musculoskeletal pain, fatigue, and nonrestorative sleep. Your sister is tired because she is not
getting good quality sleep. Therefore her body is not able to replenish her energy and get the rest
provided by deep sleep. Her constant muscle pain, fatigue and the many other symptoms
associated with FMS interfere with her ability and motivation to complete necessary chores,
perform effectively at work and socialize. You are helping her by giving your compassion,
support, and understanding.
Most of the treatments outlined in this column are recommended by FMS experts.
However individuals with FMS are unique in how they experience their symptoms and how they
react to the suggested treatment. Therefore it is wise to work closely with your medical
treatment team. Also, keep trying proven methods in different dosages and degrees and stay
current with the research by reading credible newsletters and web sites.
Treatment for FMS requires a comprehensive, and interdisciplinary approach to control
symptoms. Each person's recipe for relief will be different, and there is no definitive answer to
why some things work well for one person and not at all for another. However, if you look at
medicine in general, the trial-and-error approach is used for many medical conditions. There is
no one-plan-fits-all, nor is there a cure. For more information on research and treatment update
attend the educational conference, Fibromyalgia Awareness Main Event, or F.A.M.E. 2000, at
the Universal Sheraton Hotel, Universal City, CA. on May 19-21 and check out the Arthritis and
Fibromyalgia web sites and newsletters in this column or attend the International Awareness Day
For FMS May 12. The following nonpharmacologic treatments are just a few ways to manage
the symptoms of FMS:
- •Educate yourself. The more you learn about FMS the more you understand and
the less frightening it is. With time you will realize that it is a treatable and valid
medical condition that is not life threatening. It's important to have a self-help,
self-care philosophy and join a FMS support group. Support groups offer current
information, physician referrals, validation, acceptance, networking, goal setting
and reinforcement. You can also attend an ARTHRITIS FOUNDATION
FIBROMYALGIA SELF-HELP COURSE. It's a education course designed to
provide skills and support to people with FMS or sign up with the FRIENDS
HEALTH CONNECTION. They help individuals cope through the power of
friendship and the empowerment and mutual inspiration that friendship can offer.
- • Eat healthy. Choose supplements that meet your dietary needs. Many nutritional
supplements are effective in reducing FMS symptoms. Supplements such as
SAMe, Magnesium, L-carnitine and NADH are just a few. It is critical to follow a
balanced diet and take a multivitamin containing at least 50 milligrams of the B-complex vitamins. Beyond these, consider adding L-carnitine a natural fatigue
fighter and NADH a natural energy producer. As the cells become more
energized the body becomes stronger and more vitalized. Recent studies indicate
that people with FMS have low levels of magnesium. NATURAL CALM, an
organic magnesium drink with superior assimilation, replenishes those levels as it
relaxes the body, reduces muscle pain and promotes sleep. FMS individuals
using a combination of malic acid and magnesium hydroxide report improvements
with reduction of muscle fatigue, soreness, and pain, and an increase in exercise
tolerance.
- •Reduce your stress. Massage can help ease some of the muscle pain, and
induce relaxation so that you can sleep better. Playing soothing music and
breathing deeply also will relax you. Train yourself to "pace, not push" as you
move through your day. Take mini-relaxation breaks all day. Be creative in finding
tools and techniques that will help you relax e.g., The NEUROBAND™, a product
that enhances relaxation, aids in the release of tension and allows the body to
return to its natural state of balance so you are better able to handle the
challenges of your day. Realize that you can only change yourself and how you
choose to react to your stressors. Your positive attitude and outlook are what will
help keep stress under control. Exercises involving slow, gentle, gradual
stretching, like pilates, are especially helpful in promoting deep relaxation, muscle
reconditioning and improved posture. Physical therapists recommend stretching
to improve sleep and manage pain. The type of stretching pilates offers also
helps to elongate muscles, alleviate pain, tension, increases agility, strength,
endurance and mobility. Miora Stott, a highly acclaimed and recommended leader
in the pilates industry, has compiled The FITNESS CIRCLE WORKOUT and the
Stott Conditioning Videos. Also, a physical therapist can help you select the best
stretching program for your needs and teach you specific stretch exercises.
Several controlled studies have shown that cognitive-behavioral therapy improves
fibromyalgia. Cognitive therapy involves stress reduction techniques and
education. Stress can also be reduced using biofeedback, yoga and meditation.
In a controlled study using hypnotherapy in treating fibromyalgia, researchers
concluded that hypnotherapy may be useful in relieving symptoms and reducing
stress. Hypnosis is an effective adjunct to cognitive-behavioral therapy. In a
hypnotherapy session, you and the therapist work together as detectives to
determine what changes need to be made and what is behind your struggle to
make these changes. A hypnotherapist who specializes in FMS is recommended.
Lane LaRue, a clinical hypnotherapist specializing in clients with FMS has a
unique program that she offers to FMS support groups. She gives FMS suffers
specific assistance in deep relaxation, pain reduction and sleep enhancement.
She teaches her clients self-hypnosis techniques, creates customized audio
tapes and offers phone sessions as adjuncts to the first several sessions.
- •Begin an exercise program. Experts recommend that you establish a program of
gentle stretching first. Then add a progressive, gradual walking program starting
with five or 10 minutes twice a day, slowly building up to 30 minutes daily.
Walking is the first step toward a general toning and conditioning program. Over
time, muscle and vascular spasms will decrease, and muscle tissues will become
more oxygenated. You can also add warm-water exercise and stationary
bicycling. The Arthritis Foundation offers a videotape of a warm-water exercise
program, FIBROMYALGIA INTERVAL TRAINING. It also offers local Aquatics
Programs, a six-to-10-week exercise program in a heated pool. FMS individuals
should avoid high impact exercises such as jogging, basketball or any activity that
involves jumping up and down. The best approach to consistent exercise is to
look at it as part of your daily activities and start each daily walk with gentle
stretching. To stay motivated use videos, gadgets, or join a walking club. The
Mio™ Watch and Heart-Rate Monitor is a perfect personal coach. It motivates
you while you're walking by accurately measuring your heart rate (but without the
awkward chest-strap that other monitors require) by simply pressing the watch
face. By pressing another button, it will tell you your calories consumed and
burned, your distance, speed, and time. What makes this watch/monitor so
special is its ease of use and accuracy. Dr. Sharon R. Clark, Assistant Professor
of Medicine Oregon Health Science University is a fibromyalgia fitness expert and
consultant. For more exercise information or to learn more about her exercise
videos, visit her web site at www.myalgia.com.
Researchers and FMS doctors continue to study FMS to determine the etiology of the
illness, to validate or disapprove the many theories and to produce effective medications and
therapies. Their efforts have given us much relief and hope.
This column is not intended to diagnose, treat,
cure or prevent any disease. It is for entertainment
and educational purposes only and not intended as
medical advice.
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